When this finding out this news a verse in the Bible stood out to me.
"Now FAITH is being sure of what we hope for and certain of what we do not see." Hebrews 11:1 (NIV)
It is a struggle because, all I hear and see is the doctor result and the bad outcome. At the same time trying to trust God and His plan. I do not want to lose my baby girl Faith.
Anna
PS: here are a few links to check out.
http://ghr.nlm.nih.gov/condition=thanatophoricdysplasia
http://www.nowilaymedowntosleep.org
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