Almost a Year living in this Nightmare

Well last year at this time that is when my nightmare began. That is when we found out about the heart condition and then a couple days later was the 20 wk ultrasound and that is when they noticed the skeltetal dysplasia. When does life get back to normal? It has almost been 9 mths since Faith made her short apperance on earth and it still hurts. I miss my child so much! For all you parents out there who have your children, hold them close and make sure you tell them you love them. Cherish each moment you have! You never know how long they will be here on earth. Anna